Cameron James Chronicles Her Faith Journey in the Midst of Husband and Daughter's Ultra-Rare Disease in New Single

Documenting her powerful journey of faith throughout both her daughter and husband's battle with an ultra-rare disease, pop-infused singer/songwriter Cameron James just released her latest single, "Born To Bring The Light."
In 2012, James was told the shocking news that her first-born, Elise, had suffered mild brain damage while in the womb resulting in developmental delay. In 2014, after admitting her daughter to the hospital with abnormal bruising, James learned that Elise also had the ultra-rare autoimmune disease, Atypical Hemolytic Uremic Syndrome (aHUS). The snowball effect continued for James' family when just three years later in 2017, her husband James Shadinger was admitted to the hospital. Arriving at the ER in kidney failure, he was told the news he also has aHUS. Despite the genetic nature of the disease, they are the only known family to have a parent and child with aHUS. With numerous songwriting credits to her name, most recently Danny Gokey's hit song, "The Comeback," James' newest single, "Born To Bring The Light," recently hit Top 10 on Australia's TCM chart. James describes her latest as "a counter to the wrecking ball that wanted to rip apart my life and heart."
"It is estimated that for every 1,000,000 people, there are two with aHUS. To have two people in my own family makes us the ultra-rare of the ultra-rare. It is because we are so rare that people want to hear our story. Only God could turn something so negative into a positive," said James. "The past couple of years, I have watched our story become a part of a much bigger story, and we are honored to join the fight."James has spent the past few years sharing her story, advocating for those also affected by ultra-rare diseases, many of which require some of the most expensive medication in the world.
In Washington D.C., James has lobbied in support of The Access to Marketplace Insurance Act, a bill that would remove a current restriction allowing insurance agencies to reject charitable patient financial assistance. Most recently, James spoke at Alexion Pharmaceuticals' National Sales Conference, where she shared the story of her family's journey with aHUS to over 400 employees. Alongside her lobbying efforts, James recently took to social media imploring fans to tweet at their local representatives to sign on to The Access to Marketplace Insurance Act.
"Currently there is a misguided federal rule that allows health plans in 42 states to deny coverage to patients simply because they receive help from charities. These insurance companies are allowed to reject third party payments made on behalf of chronically ill and rare disease patients. This feels criminal because it's not the patient's fault their care is so expensive. Anyone who comes alongside and wants to help ease that financial burden should be allowed to. This bill is special because it's a bipartisan issue. People from both political sides are coming together to speak up for those who are suffering."
About Cameron James:
Cameron James is a singer/songwriter and social advocate from Nashville, TN. Her first self-titled EP, Cameron James was released in 2014, followed by All Out War (2015). James underwent a cataclysmic season, first with her daughter's battle with the ultra-rare disease aHUS, then followed by her husband's battle with the same disease. The singer was empowered to use her music and platform to advocate for those also affected by ultra-rare diseases, lobbying in Washington D.C. in support of the Access to Marketplace Insurance Act. With songs featured in Bravo's Vanderpump Rules and ABC's hit series, Quantico, James signed to Dream Records in 2016, and soon after released "Beside You," along with her latest single, "Born To Bring The Light," available now. Get Connected with Cameron James:Website: http://www.cameronjamesmusicofficial.comFacebook: https://www.facebook.com/cameronjamesmusic/Instagram: @cameronjamesmusicofficialTwitter: @camjammusic
Tags : cameron james cameron james news cameron james born to bring the light dream records
Hot Trends
-
Aaron Williams Teams Up with SEU Worship's Chelsea Plank on "Simply Jesus"
-
Sarah Kroger Offers an Acoustic Version of “Humbled Heart”
-
Dustin Starks Releases New Single, "Patiently Waiting"
-
Brooke Ligertwood Records a New Version of "Desert Song" for EIGHT
-
"Zach Williams Revival Nights" Fall 2025 Tour Features We The Kingdom, Ben Fuller, and Leanna Crawford
-
Phil King Reveals How "Miscarriages" Has Been Impacting Listeners in Exclusive Interview
-
Lysa TerKeurst Remarries Two Years After Divorce
-
Learn How to Write a Worship Song with Matt Maher
-
Here Are Lyrics to Charity Gayle's "Name Above All Names"
-
Hillsong Worship Former Leader Miriam Webster Gets Married
-
Evan Craft Challenges Us to Live the Word with "Good Neighbor"
-
Sandra McCracken Covers Neil Young, Bob Dylan, Irving Berlin & Others on New Album
-
Film Director Stephen Gray Opens Up About the Reality of Life After Death
-
New Family Movie "Beyond the Mask" Combines Faith, Action & Adventure (Watch Trailer Here)
-
Larry Fleet’s Headlining 2025 "Hard Work & Holy Water Tour" Announced
Most Popular
-
Aaron Williams Teams Up with SEU Worship's Chelsea Plank on "Simply Jesus"
-
Sarah Kroger Offers an Acoustic Version of “Humbled Heart”
-
Dustin Starks Releases New Single, "Patiently Waiting"
-
Brooke Ligertwood Records a New Version of "Desert Song" for EIGHT
-
"Zach Williams Revival Nights" Fall 2025 Tour Features We The Kingdom, Ben Fuller, and Leanna Crawford
-
Phil King Reveals How "Miscarriages" Has Been Impacting Listeners in Exclusive Interview
-
Lysa TerKeurst Remarries Two Years After Divorce
-
Learn How to Write a Worship Song with Matt Maher
-
Here Are Lyrics to Charity Gayle's "Name Above All Names"
-
Hillsong Worship Former Leader Miriam Webster Gets Married
-
Evan Craft Challenges Us to Live the Word with "Good Neighbor"
-
Sandra McCracken Covers Neil Young, Bob Dylan, Irving Berlin & Others on New Album
-
Film Director Stephen Gray Opens Up About the Reality of Life After Death
-
New Family Movie "Beyond the Mask" Combines Faith, Action & Adventure (Watch Trailer Here)
-
Larry Fleet’s Headlining 2025 "Hard Work & Holy Water Tour" Announced